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The worst 2 days of my life.

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Replies: 362
By:
Burton-Brewers
When: 14 Feb 14 20:18
she managed to give my finger a squeeze today

that is an interesting development. Sounds to me as though the spinal cord is swollen, after sustaining damage to the cord that causes swelling it can take up to 6 months for it to go down so further improvements could follow.
By:
Capt__F
When: 14 Feb 14 20:21
Bit of good news all the best SK
By:
Alias
When: 14 Feb 14 20:26
Appreciation to all. You never, ever know what's round the corner, and I can tell you some things never sink in, except for the feelings of robbery and unfairness. Life really can be cruel, but that IS life.

Very best to you kenbo.
By:
Blades
When: 14 Feb 14 20:29
I wish you and missus best of luck...puts things in perspective.
By:
Tommy Toes
When: 14 Feb 14 20:29
Couldn't agree with you more, Alias, in everything.
By:
Makybe_Diva
When: 14 Feb 14 20:50
"she managed to give my finger a squeeze today"

That has got to be good news, kenbo.

I really hope things improve very soon for your wife.
By:
maleuk01.
When: 14 Feb 14 21:15
Hope all goes well for both you and your wife.
By:
Hank Hill
When: 14 Feb 14 21:59
kenbo that seems huge that she could squeeze your hand. I go through a lot of ups and downs with my boy and it can be hard to stay positive. Try and take small steps because I know I get overwhelmed with the whole picture for my lad. Take the positive event that has happened with the hand and try to build on it. Hang in there kenbo.
By:
moisok
When: 14 Feb 14 22:02
go for it kenbo
so many of us are carp at betting but this is one I am betting on for a good result
all the best
Mo xxx
By:
creatureinthesky
When: 14 Feb 14 23:51
Best wishes Kenbo. This is your time to carry her and I hope you both come through it together. Please be open and talk about what you're going through with people you can trust, don't be too proud to tell the medical staff what you are going through yourself.

Love is all we really have that lasts.
By:
trilby22
When: 14 Feb 14 23:57
I have little idea what the story is here but I know it is not quite good.

Good luck. have Faith and ...

http://www.youtube.com/watch?v=zaGUr6wzyT8
By:
Dobbo
When: 15 Feb 14 00:04
This is the most sobering thread to ever appear on cc.Everyone on here wishes for a full recovery for your wife and a return to stability. You must be at your wits end having your lives turned upside down so suddenly.What is the cause? Have the doctors given you a diagnosis?I hope it turns out well for you both.
By:
unders101
When: 15 Feb 14 00:07
Just read this thread right through now. All of my best wishes to you and your wife mate
By:
SlippyBlue
When: 15 Feb 14 00:18
Indeed it does Dobbo and we, eclective bunch that we are on here, all wish nothing but the best for Mrs.Kenbo. It puts everything into perspective at how fragile we all are.
By:
treble
When: 15 Feb 14 00:25
Brilliant news about the finger squeezing. It must have been amazing for you.

I remember when I started to feel my left hand side again after my stroke. It sounds slushy but it was like the room gets warmer and the sunlight comes streaming through the windows all of a sudden. It gave me the push to work harder and harder to get stronger.

Your dear wife's situation is markedly different, but I'm sure she will have the same determination I had and will get there if her body allows her to. You are massively important too. I could never have done this without my family. They were there every step of the way as I'm sure you will be as well.


Best wishes to the both of you.
By:
rob_dylan
When: 15 Feb 14 00:33
Best of luck Kenbo and Tracey.
By:
s.kenbo
When: 15 Feb 14 07:42
It has been diagnosed as spinal infarction, as Dobbo and Studyform thought it might be. Obviously I've looked at nearly every web page I can find on it. If I hadn't of already spoken to the doctors about her case then I would have been fairly optimistic of some sort of recovery after reading all those sites. But they have told me she will need round the clock professional help for the rest of her life. My main hope for now is that she can breathe for herself. Anything more than that would be a huge bonus.
I'm lucky to have so many friends and family rallying around me, trying to be reassuring, but in all honesty they are as dumfounded as I am.

Your guys (and lasses) support really does help too. And to Hank, I really do hope that Hank Jr is giving you ear ache very soon!
By:
s.kenbo
When: 15 Feb 14 07:48
Treble, it was very similar for me yesterday. When Tracey managed to squeeze my finger, and she knew that I'd felt it, her face lit up. It was a joyous moment in what has been one hell of a week. Happy
By:
bigmo
When: 15 Feb 14 07:54
Lost for words but so happy to read that your wife has managed to squeeze your finger.All of us here are hoping that things work out well for you both.
By:
collywobble
When: 15 Feb 14 08:53
Yes we are bigmo. Was thinking about Mrs Kenbo all day yesterday, showed this thread to Mrs Colly and she burst into tears.
By:
squares
When: 15 Feb 14 08:58
such a powerful story of how life can change forever in an instant.

Shocking.
By:
squares
When: 15 Feb 14 09:01
started 12 Feb and this reads almost like a diary of what s.kenbo has been going through.

He must be in such a state of shock, but having to be strong for everyone else and to cope with all that is happening and take in what is being said.
By:
Injera
When: 15 Feb 14 09:23
Can you tell us Tracey's state of mind Kenbo? Can she communicate with you in any way?
By:
s.kenbo
When: 15 Feb 14 09:29
She is communicating through her mouth, we can lip read what she is trying to say. She has had a tractotomy so we hope she will be able so speak in the coming days. Her state of mind is very very good.
By:
Injera
When: 15 Feb 14 09:35
That's very encouraging.. She's clearly a very special lady indeed.
By:
Glossy
When: 15 Feb 14 09:48
All the best kenbo and Mrs Kenbo. Hoping that things continue to improve and that a full recovery can be made. Keep us informed.
By:
STUDYFORM
When: 15 Feb 14 11:04
Here's hoping and wishing for gradual improvement of her condition in the weeks to come, although it's a life changing and terrible thing to have happened to her, it can get less bad, s.kenbo. Stay strong mate.
By:
Dobbo
When: 15 Feb 14 11:36
I am a great believer in second and even third opinions as far as doctors go.I dont know where you live or if your wife is in a specialist unit but you might care to look for further advice from
That National Hospital for Neurology and Neurosurgery.Its specialist, NHS so you can easily get a referral. The wife of a friend of mine was treated there following a botched treatment for a brain tumour and despite all expectations she is still going strong several  years later.
By:
nortons
When: 15 Feb 14 12:14
Best wishes Kenbo and Tracy,keep positive.
By:
s.kenbo
When: 15 Feb 14 12:31
I will have a look into that Dobbo. Thanks. The spinal injuries seem to be far from the doctors/nurses minds at the moment, their primary goal at this moment in time is her breathing.

As squares says, this very much seems to be my diary of the events unfolding. I hope I can show Tracey this one day. The support of people who don't even know her is staggering.
By:
s.kenbo
When: 15 Feb 14 12:45
I have just phoned them up Dobbo. I could only speak to someone on the switchboard, and they told me she had to be a patient there for anyone to see her. She is in Leicester Royal Hospital so how do I go about getting a second opinion? You hear all the time about second opinions saving peoples lives, but it seems quite hard to get one from anyone. I also tried phoning the Queens Medical Center the other day, after you mentioned a second opinion but got no help there either.
By:
Burton-Brewers
When: 15 Feb 14 12:47
it is very cruel what life chucks at us sometimes ken. Although your wife is ill you are the one who will suffer that's why I said you need to be strong. I couldn't have managed without my wife and I don't know how she has managed it, I'm not sure I could.
By:
Dobbo
When: 15 Feb 14 13:23
Its very difficult because she is immobile.You could ask for a referral to the hospital I mentioned but she would have to be moved there which would not be an option I guess.Is your consultant in Leicester Mr Sell?(he crops up on google).You could just ask him or the head honcho whoever he is how you go about getting a second opinion given the circumstances. It is vital you know all there is to know
By:
Burton-Brewers
When: 15 Feb 14 13:42
pity she wasn't at Derby ken the consultant I had was a genius, I wonder if you can pay to have someone else brought in?
By:
Ovalman.
When: 15 Feb 14 13:56
I think this thread shows the goodness in people even despite the differing opinions of Chit Chat. You can tell by the amount of views that people do care and that you have our support. I think the thread has also threw up some useful info that you may not have got otherwise.

Thanks for keeping us informed, I sincerely wish you and your wife well and hope things turn for the better.
By:
Hank Hill
When: 15 Feb 14 16:23
kenbo - my boy is being noisy - I am touched you remembered with what you are going through. Hank Jr has a trach, so feel free to ask anything if you want, either here or PM. Take care.
By:
s.kenbo
When: 15 Feb 14 19:38
Hank, your sons story brought a tear to all of our eyes. I'm very glad things seem to be getting louder in your houseHappy. Her trach was only done yesterday, she had an uncomfortable pipe down her throat for about a day first. I thought that she would be able to talk a day or two after the op, it appears that I was wrong there. She tries to speak, and every now and then you can just about make out one word, but it's mainly lip reading at the minute.

We had a talk with another doctor today (it wasn't a Dr Sell, but I may look out for him) he pretty much told us what the others had said, it's very unlikely she will get much better than she is today, could be in hospital for a few more months, possibly going on to a spinal rehab in Sheffield after that, not to get too encouraged by any movement because it could stop as quick as it started (that didn't encourage us too much but at least he was being honest) and the worst of the news was that they really didn't know if she will breathe for herself again.

My main hope now is to sort her breathing out. If she manages to do that I will be an extremely happy man.

BB, I think many things are manageable when something happens to a loved one. You seem to be talking from experience there, may I ask what happened to you? I don't think I've read about it on here.

Ovalman. my thoughts exactly. It shows that 99.99% of people are kind, thoughtful and loving. A big big thank you to the chit-chat massive. Wink
By:
themightymac
When: 15 Feb 14 19:47
Hank and Kenbo, I wish you both all the best following your recent worries.
By:
pumphol.
When: 15 Feb 14 19:59
Not sure how I missed this thread but  Kenbo   my heart goes out to your wife that she can make a recovery  & I can only wish you both all the very best for what lies ahead.
By:
dewey
When: 15 Feb 14 20:07
Puts everything into perspective - very, very best wishes.
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