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Replies: 105
By:
smirnoff2therescue
When: 24 May 19 00:01
i like to think im a gud friend of wazza/aka willyshafter on hr forum - people divnt like him cos he calls them out - ok he aint subtle but he calls a spade a spade and giv me that man every day ova daydream believers - i dont do facebook or twitter so this place is my that but on things like this why not share your experiences  whether right or left.

Im from coalmining stock and the current British Steel crisis does make me laugh cos i live close by to a town that the "iron lady" tried to wipe out in 1980 by closing a steel plant that was making money - funny how it all comes around again

#staypositive
By:
Kriskin
When: 24 May 19 00:59

May 23, 2019 -- 4:45PM, TINnotaTON wrote:


Was diagnosed myself last month with ( at this moment in time ) stage 1 localized prostate cancer. my father was diagnosed in march 2012 ( after developing sudden symptoms ) with metastatic prostate cancer and lived just over 3 years before passing away 2 days before my birthday. he was 72. His oncologist advised him to tell me that ( as i was late 40's at the time ) that i should start yearly psa and prostate tests and this latest test my psa had gone up. i've had one biopsy that showed some cancer in the left hand side of the prostate only, but after seeing my oncologist at Salford royal, this month he wants to be clear and i now have to undergo a further transrectal ultrasound biopsy next month  first one was bad enough, but at least i'll be put out for this. Early testing i guess has saved me, i also think back to my dad having those slow growing symptoms all his life and i guess he being the sacrifice for my early testing, heartbreaking also, speaking to so many guys in clinic who's cancer has also spread, really affected me mentally at the time, listening to them speak, fcuking criminal.ANY DOUBTS about your health...............PLEASE GO TO YOUR GP.


TINnota - what was ur PSA reading that went up?  Was it above 3 - 4?  Cheers

By:
pumphol.
When: 24 May 19 10:07
Long story short. was diagnosed with prostrate cancer in Sept, no symptoms whatsoever, however my father had it so in 2014 I had a test, this actually led to finding out about something else but the prostrate was not mentioned again, however after 4 years of not taking a psa test I asked for another, this came back with a reading of 6.4 hense the investigation which led to a biopsy & a result of very early & slow growing cancer, I was given three options removal, radiotherapy & Active surveillance, I did ask if the latter was a viable option & was told yes, there is sometning called the Gleason score & mine is the second lowest so watching is viable, I have a blood test every three months, the first one after my biopsy in Feb was still 6.4, it was at that stage I actually found out what my psa result was back in 2014 & it was 2.4, I had my next blood test last week results on Wednesday so fingers crossed, everyone is different if it was the only cancer I have I suspect I would want rid I suspect it could play with your mind knowing you have it & just watching it progress, however having had chemo 18 months a ago I feel fine & I'm checked on a regular basis with another biopsy later in the year I suspect, the fact is many people get diagnosed & succumb to other ailments that's not to say I wont have treament at a later stage, in fact its the gleason score that is more important than the PSA apparently if that was high I would have needed more extensive treatment.
By:
Mr Eboue
When: 24 May 19 11:27
Best of luck Pump. I hope the results come back with good news. God bless.
By:
pumphol.
When: 24 May 19 13:35
Thanks Mr E

All the best to one & all.
By:
TINnotaTON
When: 24 May 19 16:24
Hi PUMPHOL,

after regular 9 monthly tests since 2012, where my psa was always 2.1, my latest blood psa test in march showed it had risen to 5.1, not particularly high compared to many that are diagnosed, ( my dad's was 1,536 on his diagnosis ) but although my prostate felt normal, my gp said that because my psa had risen and because of my family history, it was just precaution to do a biopsy and make sure, my gleason score was 3 + 3 = 6 so lowest reading there.
As already stated, the oncologist at salford royal wants to double check with this transrectal biopsy, holy moly, ( i actually said that in the room on my first biopsy, when he inserted the probe lol )
I understand your predicament, if this latest biopsy comes back the same, i will go on active surveillance as im comfortable with that, im not ready for surgery just yet and im not having radiotherapy as a first treatment, as if the cancer should return later in life, it can lead to more problems after the then prostate removal, where the after symptoms can treble ( ie, incontinence can worsen for recovery time or may never get better )
I agree with you, that if non removal of the gland ( ie active surveillance ) its always in your mind that the cancer is there, but i can live with that, its just a pity for me that because ( like you no symptoms ) my dear old dad never got any option except prolonging his life for 3 years
By:
TINnotaTON
When: 24 May 19 16:25
Best of luck also, any further questions i'll be like mr eboue, more than happy to answer, best wishes

TIN
By:
TINnotaTON
When: 24 May 19 16:35
KRISKIN,

sorry was answering to your post as well as PUMPHOLS ( was using small screen, so it got a bit fcuked up )
By:
Facts
When: 24 May 19 19:06
TINnitaTON

Good luck to you, hope all turns out ok.
I have had yearly blood tests for PSA count since I was 40, (now 68). A simple test absolutely saves lives.
I know a lot of men fear going to the doctor about their prostate because they assume it will be the finger up the bum test.

My PSA is always around 1.3, but I know any change that represents a significant % increase, will be followed up.
I've always been advised to be wary of biopsies. This is a very invasive operation and can often lead to more problems regarding infection.Also it is somewhat ' hit and miss ' because any biopsy represents a sample taken from one particular
area of the prostate. That part may not show cancer , whereas cancer may exist in another part of the prostate.
The ' wait and watch ' strategy is a good one. My brother in law was diagnosed with prostate, but the consultant said, there was more a likelihood of him dying of old age, rather than the cancer growing to a point where it became life threatening. Every person is different and need to be treated accordingly.
By:
TINnotaTON
When: 24 May 19 19:27
Thanks for your kind words FACTS, your correct about the biopsy, i was lucky as i did not suffer infection, but had really bloody semen for 3 weeks, but none in my urine or stools. there were 12 samples taken, 6 from each side of the gland and you are again correct to say its a bit hit and miss, thats why im now undergoing the transrectal method were they take up to a maximum  of 25 samples from all over ( there will be nothing left of the prostate to remove at this rate ) it's sh1te to have to go through all this again for conclusive prognosis, but like your brother, im hoping for the same outcome....

Cheers
By:
TINnotaTON
When: 24 May 19 19:28
Should have stated a minimum of 25 to maximum of 50 from all over...
By:
themightymac
When: 24 May 19 20:53
Good luck TIN. You can beat it.
By:
Lee Ho Fooks
When: 24 May 19 20:59
Life's too short, stay lucky everyone.
By:
crystalhunt
When: 24 May 19 22:16
Facts - I had biopsies taken from my prostate a few years ago. It is invasive as you say and the risk of infection is mainly because the fact that the biopsy has to be taken through the back passage. It involves basically firing a gun at the target 12 times to different areas. I think you would be very unlucky if they missed an area where cancer was present but of course it is possible. It was a bit painful but the nurse holding my hand eased the pain.
I was informed that the biopsies were clear and the enlargement was benign. I did however need an op which is called a bladder neck incision because of tightness of the bladder neck. Now putting out fires but still need regular PSA test.

Good luck all - if you're not wearing a prostate man badge - send off for one - people always ask what it's for and thereby helps raise awareness.
By:
UBLE/REGY
When: 24 May 19 22:51
I have great sympathy for Mr Eboue

and everyone on this thread

Cancer is a terrible disease...we are still a way from defeating it


But hopefully we will do it one day


Hope those mentioned on this thread recover
By:
pumphol.
When: 24 May 19 23:06
All the very best TIN
By:
Hank Hill
When: 24 May 19 23:11
I wish all the best to anyone on here who is undergoing treatment, or friends/family who are. Seeing as a lot of sharing is happening I will add to it. My wife found out recently that she has the BRCA gene. While she is cancer free, she has made the decision to undergo breast and ovarian surgeries - I have to say it was quite the gutshot to find out she has it tbh.
By:
casemoney
When: 25 May 19 00:21
G luck TIN early Diagnosis is the Key to Survival, 1 in 2 of us will suffer some form in our life time ..
By:
casemoney
When: 25 May 19 00:37
The strange thing is that I had bladder cancer but can think of no Male Members in my Family and Extended family who had cancer
and thats going Back years PlainMost of them would have Smoked and drank also , Infact in a family of 14 my father came from
only one person a Woman had Cancer PlainMy aunty who Died two years back,she was a Non Drinker and Smoker as far as I know .  ... His Parents Died in Old age Heart problems .

My Mum who was an only Child never had it and Neither did her parents Plain PlainMy Grandfather Drank heavily and Smoked , His Liver Packed up , Grandmother smoked Woodbines Died aged 94 from Old age  ..

That is a massive selection of People with no or as near as People with cancer , And would include their children as far as I know ..Well up till the Last time I heard from them .

Makes no Sense Plain  Spec when you read these days you are about evens to be diagnosed at some stage Plain
By:
FrankRA
When: 27 May 19 12:00
ttt
By:
saddo
When: 27 May 19 12:04
My lady was diagnosed with cancer in her breast two weeks ago today. We know nothing more than that and have the first meeting tomorrow, I don't know how she has coped.
By:
TINnotaTON
When: 27 May 19 17:00
Im Very sorry to hear that saddo, i hope you get positive news from your wife's consultation, it is obviously a very stressful time for you both...
Thanks also for all the kind words from everyone on here, im due my next biopsy on 21st of june and will update once i know my full diagnosis and treatment.

Best wishes,

TIN Grin
By:
casemoney
When: 27 May 19 17:36
G luck , Stage  of Diagnosis is the Clincher hopefully both cases Early stage , Try to stay positive you will be in Top class hands , the care I had From the NHS 2nd to none ,4/5 weeks from Diagnosis to Tumour being removed ..
By:
casemoney
When: 27 May 19 17:40
Regarding Facts and the Finger up the Bum, the first one I had Done was By a Very attractive young asian female Doctor Love  The strides were Down, finger up, stride back up in a Matter of seconds , I had not been expecting it Laugh

Nothing to fear what so ever ..  Happy
By:
TINnotaTON
When: 27 May 19 17:45
GrinGrin a few of on here are veterans of that side on, knees up to chest position casemoney...... i'veShockedShocked had to many
By:
STUDYFORM
When: 27 May 19 18:43
Awful thing, cancer. Some of the treatments aren't much fun either.
To everyone affected goes my sympathy and best wishes.
By:
RacingCert
When: 27 May 19 18:48
I lost Mrs Cert to ovarian cancer last moth.
The last few months were brutal.
Watching her suffer left me in tears pretty much every day.

Best of luck to everyone whose lives it may touch.
By:
RacingCert
When: 27 May 19 18:51
... and now I hate myself for every time I remember when I was horrible to her.
By:
TINnotaTON
When: 27 May 19 18:53
Sincere condolences RC, i know full well how you feel seeing a love one go downhill, the only comfort you can grasp is that you were there with her through it all and dont feel that way, it will torture you beyond belief.
By:
RacingCert
When: 27 May 19 18:56
Thank you, TIN.
I did my best.
Held her hand at the end.
I hope you are doing OK.
Early days for me.
By:
TINnotaTON
When: 27 May 19 19:02
you'll get there, but it will take time and lots of it, you did all you could and im sure she knew that, Happy

I'l be fine, once i know where im at,

Cheers,
By:
STUDYFORM
When: 27 May 19 19:26
Oh, RC. My thoughts are especially with you. Only time can ease what you're going through. I'm sure you were nice to her at times too. Keep thinking about the happy stuff and not the bits that might make you feel worse. You'd say the same to her, wouldn't you?
By:
anxious
When: 27 May 19 19:52
Sorry to hear about your Missus Racing , must have been very difficult for you and your missus
By:
RacingCert
When: 27 May 19 19:52
Thank you, SF. You are very kind.
Time ... the great healer ... let’s hope so.
We did have good times but she deserved more.
By:
RacingCert
When: 27 May 19 19:53
Thanks, Anxious.
Toughest thing imaginable.
By:
casemoney
When: 27 May 19 20:00
Cert Sad  A truly dreadful thing to have to watch a Loved one, destroyed by this disease , Lost the Father in law to Stomach Cancer ,The word Brutal describes itSad All the best Cert , The hardest  times for you .. The broken people
this disease leaves behind Sad but somehow most get through it , Life is just never the same,as you know ..
By:
RacingCert
When: 27 May 19 20:17
Thanks, Case..
You know too.

Please no more. If I could be presumptuous, i’ll take as read any more good wishes.
Thanks.
By:
mymumsfinethankyou
When: 27 May 19 20:55
https://www.express.co.uk/showbiz/tv-radio/1056566/BBC-Countryfile-Adam-Henson-medicinal-cannabis-farm-
By:
mymumsfinethankyou
When: 27 May 19 21:06
view this ,,this cannabis works for cancer patients, i bought it for a relation who had cevical cancer,[  given a year to live and told it was just like a fire burning inside her ]then contacted lymph cancer,, she was going through her chemo,  while she was taking the cannabis capsules,  before her 4th dose of chemo they gave her a scan , on going for the results ,the consultant she is seeing was astounded,,no sign of any cancer,,they told her she didnt need to take her final session of chemo,,  dont get me wrong she isnt out of the woods yet ,but she has been told there isnt any cancer ,,she still has some capsules still to take to finish her course,,not cheap though one capsule 3 times a day,,60pounds a day 5 grand,,but things are looking alot better for her.
By:
mymumsfinethankyou
When: 27 May 19 21:10
and i know other people that have taken cannabis oil,,  with fantastic resuts.
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