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GoOnThen
01 Oct 17 11:46
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Date Joined: 17 Mar 10
| Topic/replies: 6,274 | Blogger: GoOnThen's blog
How many forumites have received their screening kits?

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Replies: 62
By:
crystalhunt
When: 01 Oct 17 12:11
Been doing it for ten years. Silly not to. Has definitely saved lives.
By:
lovegod
When: 01 Oct 17 12:24
Got mine about a year ago when I hit 60, sent it off, letter came back pretty quickly, all clear.
By:
GoOnThen
When: 01 Oct 17 12:37
Yep, I did one two years ago with same outcome. New kit been in the drawer for a month, going to start it tomorrow.
By:
blackbarn
When: 01 Oct 17 12:53
The kit comes every two years from the age of 60.  Just for those who got one last year and haven't this yearWink
By:
screaming from beneaththewaves
When: 01 Oct 17 14:05
No different from any other form of cancer screening. Doesn't save any lives at all.

There's a small reduction in the number of deaths due to bowel cancer, but no difference whatsoever in overall mortality: you just die of something else instead. The reduction in bowel cancer deaths is exactly cancelled out by deaths due to otherwise unnecessary invasive procedures to follow up false positives, e.g. bowel perforation and infection due to colonoscopy.

There's also the issue of false negatives. The screening clears you, so you then ignore actual symptoms, such as long-term constipation or diarrhoea, or possible evidence of blood in the faeces.

And on top of that there's the general negative effect on overall well-being that comes from unnecessarily starting the miserable cycles of medical tests, anxious waits for ambiguous results, hospital appointments, etc.: what this article in the British Medical Journal calls "unnecessary psychological morbidity" (and that's from an advocate of screening).

http://www.bmj.com/bmj/section-pdf/187371?path=/bmj/343/7830/Head_to_Head.full.pdf

It's worth a read, relatively brief and easy to understand, and presents the cases for and against, side-by-side.
By:
Facts
When: 01 Oct 17 16:06
crystalhunt    01 Oct 17 13:11 
Been doing it for ten years. Silly not to. Has definitely saved lives.



Me too. Agreed
By:
Facts
When: 01 Oct 17 16:08

' .......There's a small reduction in the number of deaths due to bowel cancer, but no difference whatsoever in overall mortality: you just die of something else instead........'



Obviously !!! No one is immortal !!!
By:
bigmo
When: 01 Oct 17 16:14
I just couldn't do it. Weak stomach and all that. Had the camera down top and bottom again and at the moment ok.
By:
crystalhunt
When: 01 Oct 17 16:43
Bigmo - just pretend you're doing a bit of Artexing Grin
By:
screaming from beneaththewaves
When: 01 Oct 17 17:03
@ Facts: "no decrease in overall mortality" means that studies have failed to detect any difference in overall length of life between people screened for cancer and the rest of the population. Each group lives to the same average age.
By:
GoOnThen
When: 01 Oct 17 17:12
If that's the case screaming I might as well use the test kit to wipe my ar5e on!
By:
TheBaron
When: 01 Oct 17 17:25
I don't need any encouragement not to go to the Doctor.  If it ain't broke. Several times over the years I've thought I should go and get something checked out but not done, so far so good.  The one time many years ago I did I ended up in hospital with tubes being shoved down me throat, all for a false alarm.

I'll take my chances.
By:
ronnie rails
When: 01 Oct 17 18:51
I was diagnosed with bowel cancer in 2007, there was 3 of us who knew each other and we all went to see the same consultant ever fortnight, sadly I am the only who survived the others died in 2009 and 2010.

The worst part of it is the chemo some mornings it was horrific, my other half was also diagnosed with pre cancerous cells in 2000 and survived, she didn't have chemo but did have radiotherapy which left her with red raw blisters and in agony, thankfully the treatments are improved all the time, I remember being so embarrassed because my mates daughter was the nurse when I had the camera were the sun don't shine, good luck to anyone who is unfortunate enough to be diagnosed with this disease but don't give up and try to think positive.

I would rather be embarrassed and do the test and get diagnosed asap so the treatment is less than to leave it and have to have horrendous side effects from the extreme treatment needed or worse still leave it till its to late.

regards Ronnie
By:
crystalhunt
When: 01 Oct 17 19:01
Great post Ronnie , good luck to you mate. I think they are offering the test to 55yr olds in some areas. Many people under 60 are dying or living with a Stoma because the cancer is diagnosed too late.
By:
Foinavon
When: 01 Oct 17 19:39
Both my father and paternal grandfather died of it so I always send back my test in case there is a genetic pre-disposition. So far so good.
By:
Facts
When: 01 Oct 17 23:09
Also have a blood test each year to obtain PSA count ( Prostate)
By:
trilby22
When: 02 Oct 17 05:54
Yup, had a couple.  It's 50 here in Scotland.  First I've heard it isn't the same UK wide.

TheBaron, I used to think that way till I was diagnosed with cancer five years ago.  Radical facial surgery (which left half my face permanently paralysed) within a month, half my teeth pulled out followed by seven weeks of radiotherapy.  If I had bothered going to the Doc to get things checked out earlier, I could well have avoided it.

IF YOU THINK YOU MIGHT HAVE A PROBLEM - EVEN ONLY REMOTELY - GET IT CHECKED OUT ASAP!  FORGET ABOUT BEING EMBARRASSED - DOCS & NURSES DEAL WITH THIS STUFF DAILY!

Well done Ronnie and best wishes to you.
By:
Life-Lucky
When: 02 Oct 17 07:59
Very eloquent post, Screaming, you said it all. I got one of these packs thru the post a few years ago, couldn't believe what I they were asking me to do tbh. Put it straight down the chute. Spoke to some friends about it and turns out that they had both complied and thought me a fool. Your post tells me I did the right thing. Thank you
By:
Facts
When: 02 Oct 17 08:48
^ A ' head in sand' attitude about your health, is not a good choice to make. hth.
By:
screaming from beneaththewaves
When: 02 Oct 17 09:07
As trilby22 says, if you have a problem, get it checked out as soon as possible. If you have close relatives who suffered cancer, or if you're overweight, boozing, smoking or sitting on your backside all day, screen yourself for it.

But if you're feeling well, walk the dog twice a day and eat plenty of fruit and veg, you're actually more likely to be harmed than saved by bowel cancer screening, owing to unnecessary surgery caused by most positives being false ones. Most tumours are benign, but there's no way of telling which. Not to mention the misery and anxiety that come with becoming a "patient".

From that British Medical Journal article I linked to earlier:


The NHS Bowel Cancer Screening Programme
was implemented on the basis of four large
randomised trials.

Meta-analysis showed a
reduction in disease specific mortality of 15%
in the screening group compared with controls
(odds ratio 0.85, 95% confidence interval 0.78
to 0.92).
The odds ratio for all cause mortality,
however, was 1.0 (0.99 to 1.02). Thus, in more
than 300000 people included in the four
trials, there was no difference in survival
;
nor was there anything to indicate that a larger
trial would be worthwhile.
Given that the absolute reduction in disease
specific mortality was only 0.1% over 10
years, it would require an enormous trial
to detect a difference in all cause mortality
between the screening group and controls.
But is this really necessary? Taking the above
criticisms of disease specific mortality into
account and considering the robust nature of
all cause mortality in this example, surely we
should accept that screening for colorectal
cancer has no effect on overall survival?
By:
crystalhunt
When: 02 Oct 17 12:16
sfb

I take it you don't do the test.
By:
screaming from beneaththewaves
When: 02 Oct 17 13:36
Not the one in question here. I'm only(!) 56.

But living in Taunton I got a letter last year demanding that I travel to Bridgwater for a rectal endoscopy to screen for bowel cancer. Everyone over 55 gets sent this letter down here, and there's a lot of indignation in the screening community that half of us don't reply.

It involves taking an enema to purge your bowels, then somehow making your way to Bridgwater hospital with your arse purging away. In my case that would be a three-mile bike ride, a train journey and a mile-and-a-half walk at the other end.

Once there, you hang around in a surgical gown until being invited to kneel down and accept an 18-inch long flexible camera and knife to be shoved up your arse, without anaesthetic.

If polyps are found, they're cut out during the process. Even the accompanying leaflet admits that the vast majority of polyps are totally harmless. Of those that in the future might become tumours only 1 in 15 are malignant, and only 1 in 20 of those are fatal.

There is, the leaflet also admits, no actual benefit from this unless any polyps are followed up later with a full-on colonoscopy, which has definite and quantifiable dangers from bowel perforation.

Cases of bowel perforation from the initial screening with the endoscope are, the leaflet reassures you, only very rare, but do require staying in hospital for an operation.

The leaflet goes on to reassure you brightly that 4 out of 5 patients don't find the procedure painful, and only 3 in a 100 find it extremely painful.

I read that as 20% of patients find it painful or extremely painful.

I quite honestly could see nothing but downsides in this for me, from start to finish. If I'm going put myself out to prevent bowel cancer, I'd rather do so by carrying on walking and cycling everywhere, eating my greens and avoiding ciggies and booze.

But if I didn't, I suppose I'd choose to have a camera stuck up my arse instead.
By:
cooperman
When: 02 Oct 17 13:47
Sounds like a good day out to me.
By:
Ken Masters
When: 02 Oct 17 13:51
For all the good it'll do you you may as well stick it up your arse.
By:
Emitdeb
When: 02 Oct 17 15:32
Lost mother to this Horrible disease. Cant imagine a worse way to go.
By:
Slicer
When: 02 Oct 17 16:41
Being surrounded by good people is also helpful because WITH FRIENDS LIKE THAT, YOU DON'T NEED ENEMAS!
By:
GoOnThen
When: 02 Oct 17 16:46
Smeared my first two "windows" this morning. Two more days to do.. It's a bit like being an apprentice plasterer.
By:
Facts
When: 02 Oct 17 17:38
This is the preventive ' screening ' I undertake every two years.

I would not undertake the procedure that sfb indicates !
By:
TheBaron
When: 02 Oct 17 18:11
I know what they'll say about me, "If only he'd gone for the screening they'd have caught it in time".....and he could have live long enough to get Dementia.
By:
treetop
When: 02 Oct 17 18:39
Sent mine back last month,got news of all results nomral last week,gd luck GOT.
By:
casemoney
When: 02 Oct 17 19:02
What I find Strange is that Alcohol is not a Factor Re: Bladder Cancer ,But is for Bowel Cancer ..
By:
GoOnThen
When: 02 Oct 17 19:20
Cheers tt.
By:
screaming from beneaththewaves
When: 02 Oct 17 20:34
Facts, I'm not making this up!

In 2014, flexible sigmoidoscopy screening (Bowelscope) commenced in Somerset, part of the first wave of roll-out of this national programme. Individuals aged 55 are offered a flexible sigmoidoscopy. Patients with bowel polyps (approximately 5-10%) then undergo colonoscopy. The programme is being gradually extended throughout the county with all regions included by 2017.


https://www.somersetgastro.co.uk/patient-information/bowel-cancer-screening/

They will not be satisfied until the entire population of England is able to celebrate turning 55 by having a taxpayer-funded camera shoved up their backside.
By:
li
When: 02 Oct 17 20:47
re sfb 1436 today: Whatever the worth of this programme, I underwent the procedure a few months back. They assuredly did not stick a knife up my arse.
By:
crystalhunt
When: 02 Oct 17 20:52
It's not compulsory - why do you think they are doing it. I know of two people who died aged 58 and 59 from bowel cancer. It they had been tested at 55 they might be still alive and enjoying their retirement.
By:
STUDYFORM
When: 02 Oct 17 21:02
I have the camera thing every 2 or 3 years. 5 times so far, family history of Bowel cancer, I recommend no anaesthetic, most people still do have some btw, but it doesn't really hurt much and the recovery means finish, go home!
They found polyps last time, so now I have to have it even more often. As was mentioned the purging (hours and hours of emptying and starvation) is the worst bit.

Another downside is the amount of run-up they seem to take with the tube.
By:
STUDYFORM
When: 02 Oct 17 21:03
It was a little loop thing which came out of the tube and closed around the polyp and pulled it off, I don't remember a knife either.
By:
ufcdan
When: 02 Oct 17 21:39
I had a camera up the jacksy a couple of years ago. Had to go to Chichester as my local hospital Worthing had a lot of illness. First I had to wait as the person performing the procedure was running late as they were coming from.............Worthing Crazy when I was done my partner drove me back home. All the time all I wanted to do was f@rt but was afraid to in case I gambled and lost especially in her new car ! It's the first time in my life I've had trapped wind..........painful or what Shocked
By:
Capt__F
When: 02 Oct 17 21:48
well it was'nt ur car so shd av let Mother Nature do her bit really
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